Parental alopecia

Recently I have joined an alopecian group. It is very easy these days to do it. With the help of the Internet, you can find just about anything, your hearts desire, on line.

So I decided to join alopecia uk
What is great nowadays, is that you can be a member, a voyeur, with no immediate input or valued offer. A passive member. No one really knows your there. You can be someone just reading and observing. From the sidelines.

What I have been exposed to, since joining, is interviews and video clips of alopecians and their stories. It is wonderful viewing. Personal and honest.

One interview that recently stuck with me was one involving twins in New Zealand. They both got alopecia, at a young age, albeit at different times.

It was an interview that also involved the mother and she shared her distress and sadness of her daughters' conditions.
I think as a parent of young children, this disease can be hard and cruel. I do not however speak from experience . It seems the parents feel guilty for having a full head of hair and yet they can't give it to them. Instead they can only be there to offer their offspring, protection and support. They accompany them through the bullying, teasing and during the deep moments of feeling socially inadequate and downright ugly. This is no small gift.

For all you alopecian parents out there. You have a tough job. All I can offer as advise, is to get connected and find people who share and understand this cruel condition.

Alopecia uk is, at the very least a fabulous start , and at the very most an inspirational lifeline.