I was told that I write in a way that makes alopecia sound ok.
Yet she went on to tell me that, when you read between the lines of my alopecia blogs, it is not what I do say but what I do not say.
She said, it is clear that alopecia is not yet OK for you.
You still worry about it.
You still compensate for it.
You are not comfortable with it.
You still hide it.
The question she left with me was, then why do you pretend it is ok?
Today the inquiry question, I often leave at the end of my blogs, is for me.
My favorite blog yet so far of yours:)
ReplyDeleteLove it-so real..and honest.
I agree with your freind. the more I read about the way you handle alopecia on your blog -the more I feel you are less and less peaceful with it. Your head seems to be at peace-but I dont feel your heart is (yet).
the same thoughts your friend has expressed has occured to me many a time.
and it concerns me that you hold this all inside of you. Concerns me ALOT.
I want peace for you. if you need help I want to help you (if I can)
with love
LK
It seems to me that the blog is a record of a journey - and that day by day you are slowly learning and experimenting with who you are and what your appearance (as well as other aspects of yourself) mean to you.
ReplyDeleteI think you are making remarkable progress on this journey - and I (and others) appreciate you sharing it through this medium. My advice, for what it is worth, would be not to allow the medium to dictate the pace of the journey - and to continue to allow things to be revealed as they are at present.
Do you pretend that you're ok with your alpecia?? I don't think so ... I've never thought that you do! And why would you be 'comfortable' with it? I wouldn't ever be comfortable with it ... just as, after almost 16 years, I am still not comfortable with having psoriasis.
ReplyDeleteI think what you are doing is making the best of a fairly crappy situation. And if that means finding humour in a situation, or desperately trying to find the positives in alopecia, then so be it! Whatever works.
But being 'comfortable' or 'being ok' with it??? NO! Sounds to me, like the question was posed by someone who has never suffered with any type of chronic or autoimmune disorder. So when I read this I thought ... let that person come to our side of the tracks and see how they feel then.