Alopecia Survey

I recently filled in a survey.

I actually quite like doing it, well if the questions are short and to the point.

This one was, and I enjoyed doing it.

It was a survey about alopecia and how it affects the human psyche.

As I was completing the survey, I was confonted with issues I was fortunately not battling with, but it was a real eye opener.  It made me realise that there are many areas of this disease that I don't understand. I clearly understand "my" disease and "my" reaction, it is obvious that there are many other facets of this condition, of which my awareness is limited.

Here is a portion of the survey that I want to share with you, to give you also some insights.

The aim of this questionnaire is to measure how much your hair problem has affected your life over the last week.

What type of alopecia do you have?

Alopecia Areata Alopecia Totalis Alopecia Universalis Androgenetic Alopecia Scarring Alopecia Traction Alopecia Telogen Effluvium

Other (please specify)

 

Over the last week, how itchy, sore, painful or stinging has your skin been?   Over the last week, how embarrassed or self conscious have you been because of your hair?   Over the last week, how much has your hair interfered with you going shopping or looking after your home or garden?   Over the last week, how much has your hair influenced the clothes you wear?   Over the last week, how much has your hair affected any social or leisure activities?   Over the last week, how much has your hair made it difficult for you to do any sport?   Over the last week, has your hair prevented you from working or studying?   Over the last week how much has your hair been a problem at work or studying?   Over the last week, how much has your hair been a problem with your partner or any of your close friends or relatives?      Over the last week, how much has your hair caused any sexual difficulties?   Over the last week, how much of a problem has the treatment for your hair been, for example by making your home messy, or by taking up time? -------------------- So that was it, I am sure I would answer the questions differently each year I have alopecia, as things do change as time passes  Yet, this survey was a reminder, that a few years ago, I was not doing as well as I am today! Time is a great healer may be a cliche, but it does prove time and time again to be true.